Clinical Research Office. A partnership between Sheffield Teaching Hospitals NHS Foundation Trust and the University of Sheffield

Frail Forum Patient and Public involvement

Background
 
The Frail Forum is a research panel for patients and the public. It is part of the Integrated Community Care and Primary Care and Interface Services Directorates within Sheffield NHS Teaching Hospitals Foundation Trust. Our services work across hospital and community sites, and include therapy, nursing and pharmacy staff.
 
The forum was started at the end of 2016 in order to ensure the voices of the frail elderly population are heard and that they have the opportunity to influence the research process and research priorities within the Trust. This is particularly important as the frail elderly make up an increasing proportion of the Trust’s population, and as they are frequently housebound, their views have not always been sought. The aim is that high quality, patient focused research will result from the panels input.
 
The forum is made up of individuals aged over 75 with a wide variety of diseases and health conditions, often with multiple co-morbidities, who have experiential knowledge of our services and who would like to share their views with researchers. It is expected that most forum members will either have restricted mobility or be housebound. They reside in their own homes, within sheltered housing or residential homes. The panel is in its early stages and we have currently recruited 3 members, but are actively recruiting more.
 
Guidance for clinicians and researchers
 
Seeking the views and ideas of patients and the wider public is an essential part of the research process, both in terms of strengthening proposals and studies, and as a requisite of most grant applications. Unlike other PPI panels the members of the frail forum are visited at their homes by researchers and/or the PPI coordinator. Usually this will involve visiting 2 or 3 of the forum members. If you have an idea for a research project or are applying for a research grant and would like their views please contact the PPI coordinator: anne.silvester@nhs.net 
 
Anne will facilitate access to the forum and guide you through the process.There are no initial costs involved in meeting the forum members, however you may be asked to make a contribution towards travel and subsistence costs for meetings if your grant application is successful and you want further involvement of the group. It is good practice to properly cost patient involvement in your study protocol.
 
Recruiting to the Frailty Forum
 
We are actively recruiting to the Frailty Forum. If you know of someone who you think may be interested in being involved in our research please contact Anne Silvester via email: anne.silvester@nhs.net.
 
Alternatively the patient’s details can be forwarded to:
Jackie Palmer at the Clinical Research Office on ( 0114 2265412 or email Jacqueline.palmer@sth.nhs.uk 
 
Useful Documents
 
 Frailty Forum Information Leaflet