Clinical Research Office. A partnership between Sheffield Teaching Hospitals NHS Foundation Trust and the University of Sheffield

Patient and Public Involvement for Researchers

Nathan Babiker, Researcher, Psychological Services

Arranging two PPI focus groups before finalising our research proposal helped us completely re-think the study aims, and gave a far better understanding of its potential public impact than the available literature base.

 

 

Patient and public involvement (PPI) in research means research which is done with and by patients and/or the public, rather than to, for or about them (Buckland et al, 2007). Involvement in research refers to an active partnership between researchers and patients and/or the public in the research process.

PPI is important as it enables researchers to design, manage and undertake research projects in collaboration with patients and/or the public, which leads to research that is relevant to the patient groups.

Many health research funding streams now require patients and the public to be involved in research design and the development of grant applications. The easiest way to do this is to contact one of our current lay advisory patient panels in an area that matches your research. Or you can set up your own one-off group or permanent project panel yourself. The Clinical Research Office has a PPI team that will help you set up patient panels and design public involvement within your grant applications.

Please contact Dan Lawrence for further information (daniel.lawrence2@sth.nhs.uk or 0114 2268475).

What is PPI?

Find out here

Our Lay Advisory Panels

More information available here

Support for researchers wishing to engage with patients

NIHR

NIHR Research Design Service for Yorkshire & the Humber (RDS YH) supports researchers to develop and design high quality research proposals for submission to the NIHR and other national, peer-reviewed funding competitions for applied health or social care research.  RDS YH also run a funding award several times a year that gives up to £500 awards to researchers within the Yorkshire and Humber region who require funding to support patient and public involvement at the research design stage. To find out more go to the RDS Y&H PPI funding pages.

The National Institute of Health Research (NIHR) is the major funder of clinical research in the UK and encourages patient involvement. Researchers can access resources specific to PPI on the NIHR webpage by clicking here.

The NIHR Clinical Research Network also offers advice on how to involve patients in your research. To find out more please click here.

INVOLVE

INVOLVE is a national advisory group that supports greater public involvement in NHS, public health and social care research.

INVOLVE Cost Calculator allows researchers to calculate the costs of PPI in their research to enter into grants applications. Currently the patient panels running within our hospital do not offer direct payment for participating in a panel, but they do cover the costs of travel to and from all meetings.

People in Research

People in Research is a website created for members of the public who would like to find out more about public involvement in research.

NHS Constitution

The handbook to the NHS Constitution published in January 2009 pledges to do everything possible to ensure that patients from every part of England are aware of research that is of particular relevance to them. For more information about the pledge and how it will be achieved, click here.

 

Useful PPI Documents

Examples of useful documents can be found here:

Panel Information Sheet

Panel Terms of Reference

Description of chairman duties

INVOLVE Guidance for chairs

 

INVOLVE is a national advisory group that supports greater public involvement in NHS, public health and social care research. They offer a large range of information and supporting documents that explain PPI in detail. To find out more please go to http://www.invo.org.uk/.

INVOLVE briefing notes for researchers on how to involve members of the public in research.

Cost Calculator allows researchers to calculate the costs of PPI in their research to enter into grants applications.

The Clinical Research Office has created a series patient training presentations to train patients new to a patient panel. The presentations give new panel members the appropriate background to understand the research environment within England and review clinical research applications, before they join a panel.

Please contact Dan Lawrence for further information (daniel.lawrence2@sth.nhs.uk or call 0114 22 68475).