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Motor Neurone Disease Research Advisory Group

The Sheffield Motor Neurone Disorders Research Advisory Group (SMND RAG) brings together those affected by motor neurone disease to inform research.

Who we are

We are a committee of individuals that use our unique knowledge of living with the disease to join in the fight against it by helping researchers.

Our aims

This group aims to engage patients, carers and health care professionals in the process of research into the causes, treatment and palliation of motor neurone disorders.

How we shape research

Members of the SMND RAG are actively involved in the planning of research including the application for ethical approval; offering feedback on research proposals; providing ideas to improve patient involvement; and the translation of the research into clinical practice.

Find out more

We welcome new members to the group and for more information about how to access the group or to enquire about membership please contact Annette Taylor by e-mailing smndrag@gmail.com 
 

For Further information about the advisory group please look at the following documentation below, or visit the website - https://smndrag.sites.sheffield.ac.uk/

  SMND RAG Poster

  SMND RAG Flyer

 

 

David Stelmach, Sheffield MND Research Advisory Group

I was fascinated by the research undertaken at Sheffield and hoped that I could utilise my research training for the benefit of the centre and those who rely upon it for the discovery of facts about MND, hopefully to alleviate its effects and progress towards its cure and/or eradication.

 

Alison Fenwick, Sheffield MND Research Advisory Group

I hope that by sharing our experiences of this disease with the group, something positive can come from it. The tireless enthusiasm and determination of the group to improve the situation of patients with MND is commendable. I feel privileged to be part of SMND RAG, hearing about the truly amazing research which is undertaken day in, day out in this institute and others around the world gives me optimism that perhaps the next generation will not have to suffer this disease.