PRES guidance for staff 2024/2025

When do we need to offer the survey?

Who do I need to offer it to?

Any participant of an eligible NIHR portfolio trial. Ideally it should be distributed at a participant’s final engagement with a study, but if you need to distribute it at another stage in the study then you should give it to participants at the same stage of the study so it measures a consistent length of experience. It should be offered at a point when participants have had a chance to build up an experience of taking part but also recall their experience.

Some participant groups may need accessible or otherwise adapted versions of PRES - Please contact lucy.wasinski@nhs.net if you need alternative versions (Children's version, Easy Read, Large Print etc).

Do we need consent to offer the survey?

Are these given electronically or by paper?

You can do either, but please only offer one option to participants. Please see below for details:

PAPER

Paper PRES is offered via a “stick and fold” method (participants complete PRES, fold and stick down, and then drop it into a postbox and it will go via Freepost to a central data processing unit). Please request paper copies from lucy.wasinski@nhs.net or katie.gray1@nhs.net

Before you hand the survey to a participant, you must complete the information "For Staff Use". It’s vital this information is captured otherwise the survey will be discarded by the central processing unit and won’t contribute to STH targets. You need to include:

- the study name/acronym

- IRAS number/CPMS ID

- the research site/site code if taken place at STH is: RHQ.

You can either handwrite in the information, or can use a sticker template and print out stickers with the relevant information. A template for the labels can be found here. The site code remains RHQ but you will need to populate the areas highlighted in yellow with the study name/acronym on the top line and the CPMS or IRAS number on the bottom line.

DIGITAL (process unchanged from 2023/2024)

We can use a Google form that can be accessed here
You can send this link via email to the participants but you must provide the participant with the site code (RHQ), the study name/acronym and IRAS number/CPMS ID and instruct them to record this prior to completing the survey please.
If you will be sending out the link to large numbers of participants on one trial then the CRN can create a specific link for a particular study with the required study details added. If you need a study specific link, please contact lucy.wasinski@nhs.net and provide the relevant study name/acronym and IRAS number.
There is also a specific QR code for STH (please see below) that you can share with participants if they have a suitable smart phone. Participants need to open their camera on their smartphone and point it at the QR code; the QR code should scan automatically or they may need to tap the screen to scan the code, then a notification should pop up and if clicked this will go directly to the Google form. If you need the QR shared via email with you for printing, please email lucy.wasinski@nhs.net

What do I do with completed surveys?

Digital surveys – you do not need to do anything. The responses will be received centrally by the CRN who will share the number received, and the data, with the Clinical Research & Innovation Office. Please contact lucy.wasinski@nhs.net if you wish to receive the data for your study, otherwise this will be sent to you on a regular basis when received from the CRN.
Paper surveys – You do not need to do anything. NB: If you run out of surveys please contact lucy.wasinski@nhs.net or katie.gray1@nhs.net and request more.

Further information about PRES can be found here.

MS Teams Drop in Sessions with CRIO

We will be running drop in sessions about PRES in May 2024, and will be sharing details via email.